UNESCO Chair in Bioethics

Information and inscription

  • Bioethics and Law Observatory
  • UNESCO Chair in Bioethics
  • University of Barcelona
  • Ave. Diagonal 684,
    Faculty of Law
  • 08034 Barcelona
  • Tel. (+34) 93 403 45 46
  • obd.ub@ub.edu

XI International Seminar on the Universal Declaration on Bioethics and Human Rights (UNESCO): "Big Data in Health"

16.02.2017

University of Barcelona, School of Law (Main Auditorium)

February 16th 2017, Thursday

The School of Law at the University of Barcelona will hold the XI International Seminar on the UNESCO Universal Declaration on Bioethics and Human Rights: "Big Data in Health", organised by the Bioethics and Law Observatory (OBD) - UNESCO Chair in Bioethics at the University of Barcelona and the Vice Chancellor for Research at the University of Barcelona, in the framework of the LERU thematic group on research integrity.

Focus of the Seminar: Big Data analytics research seeks to exploit data sets (including but not limited to personal data) to establish correlations and trends and to improve decision making. This interdisciplinary seminar will examine Big Data research and innovation practices related to health and will focus on the ethical, legal and social issues. In particular, research integrity issues and privacy aspects will be analysed.

The Seminar will include presentations, roundtable discussions, case studies and opportunities for networking, exchanging good practice and ideas for developing policy, guidance and training resources.

This International Seminar is part of a series of seminars held every year at the University of Barcelona to analyse the International Declaration on Bioethics and Human Rights (UNESCO, 2005). In this case, Article 15 – Sharing of benefits and 18 – Decision-making and addressing bioethical issues, will be the framework.

Participation is free, although capacity is limited. Please use the online registration form.


AGENDA

Morning

  • 9:45 - 10 h. Opening
    Dr. Joan Elias
    , Rector of the University of Barcelona
    Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU Thematic Group Research Integrity (TGRI)
    Dr. Xavier Pons, Dean, School of Law, University of Barcelona
    Dr. Maria Casado, Director of the Bioethics and Law Observatory - UNESCO Chair in Bioethics at the University of Barcelona
  • 10 - 11 h. Big Data in health and bioethics
    Dr. Sarah Chan, Chancellor's Fellow, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh
  • 11 - 11.15 h. Break
  • 11.30 - 13.30 h. Round table
    Moderator: Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI

    Big Data in human genomics: Challenges and risks
    Dr. Marc Via, Tenure Track Lecturer, Department of Clinical Psichology and Psychobiology, University of Barcelona

    Privacy preserving data mining
    Dr. Carlos Castillo, Head of Data Science Unit, Eurecat Research Center, Catalonia

    Food safety in a data-driven & global economy
    Mrs. María José Plana, Lawyer, Director of Master in Food Ethics and Law, University of Barcelona

    Healthcare data analysis as a return of investment for patient care: Challenges for a university hospital
    Dr. Xavier Pastor, Chief Medical Information Officer, Medical Informatics, Hospital Clínic – University of Barcelona

    Sharing research data openly and ethically
    Dr. Ignasi Labastida, Head of the Research Unit, Learning and Research Resources Centre (CRAI), University of Barcelona

    Big Data and precision medicine
    Dr. David Torrents, Computational Genomics Group Manager, Barcelona Supercomputing Centre

  • 13.30 - 15 h. Lunch break and networking

Evening

  • 15 - 15.30 h. Big Data guidelines of the Council of Europe
    Dr. Alessandro Mantelero, Politecnico di Torino, Nexa Center for Internet and Society
  • 15.30 - 16.15 h. Research integrity and Big Data at LERU universities and EU Level
    LERU’s work in Brussels
    Dr. Katrien Maes, Chief Policy Officer, LERU

    Work by the Thematic Group Research Integrity (TGRI)
    Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU TGRI

    Research integrity and Big Data policies at university level
    Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI

  • 16.15 - 17 h. "World café": Roundtable with discussion, conclusions and lessons learned
    Moderator: Dr. Francisco Ciruela, Rector's Delegate for Strategic Research Actions and Senior Officer of the UB at the LERU
  • 17 - 17.15 h. End of meeting
    Dr. Domènec Espriu, Vice-Chancellor for Research, University of Barcelona
    Dr. Oriol Pujol, Vice-Chancellor for Digital Transformation, University of Barcelona

Photos

XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona
XI Seminario Internacional sobre la Declaración Universal sobre Bioética y Derechos Humanos de la UNESCO: "Analítica de Datos Masivos y Salud". Barcelona