XI International Seminar on the Universal Declaration on Bioethics and Human Rights (UNESCO): "Big Data in Health"

University of Barcelona, School of Law (Main Auditorium)

February 16th 2017, Thursday

The School of Law at the University of Barcelona will hold the XI International Seminar on the UNESCO Universal Declaration on Bioethics and Human Rights: "Big Data in Health", organised by the Bioethics and Law Observatory (OBD) - UNESCO Chair in Bioethics at the University of Barcelona and the Vice Chancellor for Research at the University of Barcelona, in the framework of the LERU thematic group on research integrity.

Focus of the Seminar: Big Data analytics research seeks to exploit data sets (including but not limited to personal data) to establish correlations and trends and to improve decision making. This interdisciplinary seminar will examine Big Data research and innovation practices related to health and will focus on the ethical, legal and social issues. In particular, research integrity issues and privacy aspects will be analysed.

The Seminar will include presentations, roundtable discussions, case studies and opportunities for networking, exchanging good practice and ideas for developing policy, guidance and training resources.

This International Seminar is part of a series of seminars held every year at the University of Barcelona to analyse the International Declaration on Bioethics and Human Rights (UNESCO, 2005). In this case, Article 15 – Sharing of benefits and 18 – Decision-making and addressing bioethical issues, will be the framework.

Participation is free, although capacity is limited. Please use the online registration form.

• Registration form: free participation; limited capacity
• Contact: +34 93 403 45 46 / obd.ub@ub.edu
• How to get there
• Press release

AGENDA

Morning

• 9:45 - 10 h. Opening
  Dr. Joan Elias, Rector of the University of Barcelona
  Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU Thematic Group Research Integrity (TGRI)
  Dr. Xavier Pons, Dean, School of Law, University of Barcelona
  Dr. Maria Casado, Director of the Bioethics and Law Observatory - UNESCO Chair in Bioethics at the University of Barcelona
• 10 - 11 h. Big Data in health and bioethics
  Dr. Sarah Chan, Chancellor's Fellow, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh
• 11 - 11.15 h. Break
• 11.30 - 13.30 h. Round table
  Moderator: Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI
  
  Big Data in human genomics: Challenges and risks
  Dr. Marc Via, Tenure Track Lecturer, Department of Clinical Psichology and Psychobiology, University of Barcelona
  
  Privacy preserving data mining
  Dr. Carlos Castillo, Head of Data Science Unit, Eurecat Research Center, Catalonia
  
  Food safety in a data-driven & global economy
  Mrs. María José Plana, Lawyer, Director of Master in Food Ethics and Law, University of Barcelona
  
  Healthcare data analysis as a return of investment for patient care: Challenges for a university hospital
  Dr. Xavier Pastor, Chief Medical Information Officer, Medical Informatics, Hospital Clínic – University of Barcelona
  
  Sharing research data openly and ethically
  Dr. Ignasi Labastida, Head of the Research Unit, Learning and Research Resources Centre (CRAI), University of Barcelona
  
  Big Data and precision medicine
  Dr. David Torrents, Computational Genomics Group Manager, Barcelona Supercomputing Centre
• 13.30 - 15 h. Lunch break and networking

Evening

• 15 - 15.30 h. Big Data guidelines of the Council of Europe
  Dr. Alessandro Mantelero, Politecnico di Torino, Nexa Center for Internet and Society
• 15.30 - 16.15 h. Research integrity and Big Data at LERU universities and EU Level
  LERU’s work in Brussels
  Dr. Katrien Maes, Chief Policy Officer, LERU
  
  Work by the Thematic Group Research Integrity (TGRI)
  Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU TGRI
  
  Research integrity and Big Data policies at university level
  Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI
• 16.15 - 17 h. "World café": Roundtable with discussion, conclusions and lessons learned
  Moderator: Dr. Francisco Ciruela, Rector's Delegate for Strategic Research Actions and Senior Officer of the UB at the LERU
• 17 - 17.15 h. End of meeting
  Dr. Domènec Espriu, Vice-Chancellor for Research, University of Barcelona
  Dr. Oriol Pujol, Vice-Chancellor for Digital Transformation, University of Barcelona

Photos