University of Barcelona, School of Law (Main Auditorium)
February 16th 2017, Thursday
The School of Law at the University of Barcelona will hold the XI International Seminar on the UNESCO Universal Declaration on Bioethics and Human Rights: "Big Data in Health", organised by the Bioethics and Law Observatory (OBD) - UNESCO Chair in Bioethics at the University of Barcelona and the Vice Chancellor for Research at the University of Barcelona, in the framework of the LERU thematic group on research integrity.
Focus of the Seminar: Big Data analytics research seeks to exploit data sets (including but not limited to personal data) to establish correlations and trends and to improve decision making. This interdisciplinary seminar will examine Big Data research and innovation practices related to health and will focus on the ethical, legal and social issues. In particular, research integrity issues and privacy aspects will be analysed.
The Seminar will include presentations, roundtable discussions, case studies and opportunities for networking, exchanging good practice and ideas for developing policy, guidance and training resources.
This International Seminar is part of a series of seminars held every year at the University of Barcelona to analyse the International Declaration on Bioethics and Human Rights (UNESCO, 2005). In this case, Article 15 – Sharing of benefits and 18 – Decision-making and addressing bioethical issues, will be the framework.
Participation is free, although capacity is limited. Please use the online registration form.
AGENDA
Morning
- 9:45 - 10 h. Opening
Dr. Joan Elias, Rector of the University of Barcelona
Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU Thematic Group Research Integrity (TGRI)
Dr. Xavier Pons, Dean, School of Law, University of Barcelona
Dr. Maria Casado, Director of the Bioethics and Law Observatory - UNESCO Chair in Bioethics at the University of Barcelona
- 10 - 11 h. Big Data in health and bioethics
Dr. Sarah Chan, Chancellor's Fellow, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh
- 11 - 11.15 h. Break
- 11.30 - 13.30 h. Round table
Moderator: Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI
Big Data in human genomics: Challenges and risks
Dr. Marc Via, Tenure Track Lecturer, Department of Clinical Psichology and Psychobiology, University of Barcelona
Privacy preserving data mining
Dr. Carlos Castillo, Head of Data Science Unit, Eurecat Research Center, Catalonia
Food safety in a data-driven & global economy
Mrs. María José Plana, Lawyer, Director of Master in Food Ethics and Law, University of Barcelona
Healthcare data analysis as a return of investment for patient care: Challenges for a university hospital
Dr. Xavier Pastor, Chief Medical Information Officer, Medical Informatics, Hospital Clínic – University of Barcelona
Sharing research data openly and ethically
Dr. Ignasi Labastida, Head of the Research Unit, Learning and Research Resources Centre (CRAI), University of Barcelona
Big Data and precision medicine
Dr. David Torrents, Computational Genomics Group Manager, Barcelona Supercomputing Centre
- 13.30 - 15 h. Lunch break and networking
Evening
- 15 - 15.30 h. Big Data guidelines of the Council of Europe
Dr. Alessandro Mantelero, Politecnico di Torino, Nexa Center for Internet and Society
- 15.30 - 16.15 h. Research integrity and Big Data at LERU universities and EU Level
LERU’s work in Brussels
Dr. Katrien Maes, Chief Policy Officer, LERU
Work by the Thematic Group Research Integrity (TGRI)
Dr. Ton Hol, School of Law, Utrecht University, Chair of the LERU TGRI
Research integrity and Big Data policies at university level
Dr. Itziar de Lecuona, Tenure Track Lecturer and Deputy Director of the Bioethics and Law Observatory and member of the Bioethics Commision at the University of Barcelona, Member of the LERU TGRI
- 16.15 - 17 h. "World café": Roundtable with discussion, conclusions and lessons learned
Moderator: Dr. Francisco Ciruela, Rector's Delegate for Strategic Research Actions and Senior Officer of the UB at the LERU
- 17 - 17.15 h. End of meeting
Dr. Domènec Espriu, Vice-Chancellor for Research, University of Barcelona
Dr. Oriol Pujol, Vice-Chancellor for Digital Transformation, University of Barcelona
Photos